CDR Tickets

Issue Number 3153
Summary [FOIA] Breast Cancer Treatment summary for September of 1994 - 2007
Created 2010-05-18 13:29:02
Issue Type Improvement
Submitted By Englisch, Volker (NIH/NCI) [C]
Assigned To Englisch, Volker (NIH/NCI) [C]
Status Closed
Resolved 2010-06-18 16:28:12
Resolution Fixed
Path /home/bkline/backups/jira/ocecdr/issue.107481
Description

BZISSUE::4840
BZDATETIME::2010-05-18 13:29:02
BZCREATOR::Volker Englisch
BZASSIGNEE::Volker Englisch
BZQACONTACT::Lakshmi Grama

FOIA request

--------------------------------------------------------------------
From: Manrow, Richard (NIH/NCI) [E]
Sent: Tuesday, May 18, 2010 12:50 PM
To: Englisch, Volker (NIH/NCI) [C]
Subject: FW: Old versions of PDQ treatment guidelines

Will you please send me the PDQ breast cancer treatment summary for September of each year from 1994 through 2007?

Thanks!

Rick

Richard E. Manrow, Ph.D.
Associate Director, Office of Cancer Content Management
Office of Communications and Education
National Cancer Institute, National Institutes of Health
6116 Executive Blvd., Suite 300A
Rockville, MD 20852
Telephone: 301-496-7406
Fax: 301-480-8105
E-mail: rmanrow@mail.nih.gov

This e-mail message may contain privileged and confidential information intended for the use of the individual(s) or entity named above. If you are not the intended recipient, you are hereby notified that any use, dissemination, distribution, or copying of this message or its content is strictly prohibited. If you have received this message in error, please notify the sender immediately and delete or destroy the message without making a copy. Thank you.

From: Konnyu, Kristin kkonnyu@ohri.ca
Sent: Tuesday, May 18, 2010 10:12 AM
To: Manrow, Richard (NIH/NCI) [E]
Subject: RE: Old versions of PDQ treatment guidelines

Wonderful! Thank you so much for your accommodations.

Kristin

________________________________________
From: Manrow, Richard (NIH/NCI) [E] rmanrow@icic.nci.nih.gov
Sent: Tuesday, May 18, 2010 10:01 AM
To: Konnyu, Kristin
Subject: RE: Old versions of PDQ treatment guidelines

Kristin,

We may be able to send them by e-mail in a zip file. Let me talk to our technical team. If we can do that, we should be able to get the summaries to you this week.

Best wishes,

Rick

Richard E. Manrow, Ph.D.
Associate Director, Office of Cancer Content Management
Office of Communications and Education
National Cancer Institute, National Institutes of Health
6116 Executive Blvd., Suite 300A
Rockville, MD 20852
Telephone: 301-496-7406
Fax: 301-480-8105
E-mail: rmanrow@mail.nih.gov

This e-mail message may contain privileged and confidential information intended for the use of the individual(s) or entity named above. If you are not the intended recipient, you are hereby notified that any use, dissemination, distribution, or copying of this message or its content is strictly prohibited. If you have received this message in error, please notify the sender immediately and delete or destroy the message without making a copy. Thank you.

From: Konnyu, Kristin kkonnyu@ohri.ca
Sent: Tuesday, May 18, 2010 9:59 AM
To: Manrow, Richard (NIH/NCI) [E]
Subject: RE: Old versions of PDQ treatment guidelines

Dear Dr. Manrow,
Many thanks for your prompt reply. September versions for the years 1990-2007 sound perfect. Thank you for also offering to send them conveniently all on a CD (my address is below as you noted) – do you think it’s possible they will arrive in the next week or so? If not, if it’s at all possible to have soft copies sent via email, I would greatly appreciate it. Thank you for clarifying that the documents are evidence assessments – I will make sure that is properly noted in our analysis.

Kind regards,

Kristin

________________________________________
From: Manrow, Richard (NIH/NCI) [E] rmanrow@icic.nci.nih.gov
Sent: Tuesday, May 18, 2010 9:53 AM
To: Konnyu, Kristin
Subject: RE: Old versions of PDQ treatment guidelines

Dear Kristin,

I will ask my colleagues to retrieve copies of the PDQ breast cancer treatment summary you requested. Will the September version of each year from 1990 to 2007 work for you? Or, would you prefer an earlier month? If I recall, we sent the earlier summary information to you on one or more CDs. Will that be O.K. again? If so, should we send them to the address given below?

Once again, I would like to remind you that PDQ summaries are evidence assessments, not treatment guidelines or recommendations.

Best wishes,

Rick

Richard E. Manrow, Ph.D.
Associate Director, Office of Cancer Content Management
Office of Communications and Education
National Cancer Institute, National Institutes of Health
6116 Executive Blvd., Suite 300A
Rockville, MD 20852
Telephone: 301-496-7406
Fax: 301-480-8105
E-mail: rmanrow@mail.nih.gov

This e-mail message may contain privileged and confidential information intended for the use of the individual(s) or entity named above. If you are not the intended recipient, you are hereby notified that any use, dissemination, distribution, or copying of this message or its content is strictly prohibited. If you have received this message in error, please notify the sender immediately and delete or destroy the message without making a copy. Thank you.

From: Konnyu, Kristin kkonnyu@ohri.ca
Sent: Tuesday, May 18, 2010 9:41 AM
To: Manrow, Richard (NIH/NCI) [E]
Subject: Old versions of PDQ treatment guidelines

Dear Dr. Manrow on behalf of the NCI,

I am working on a project for the Ottawa Health Research Institute at the University of Ottawa that involves analyzing clinical practice guidelines for the adjuvant treatment of early breast cancer.
The principle investigators on the project are Drs. Jeremy Grimshaw and Ian Graham and the project is sponsored by the Canadian Institute for Health Research (CIHR).

I received your contact from a colleague who connected with you in 2004 to request earlier copies of PDQ’s for metastatic breast and lung cancers. We are currently doing a 2nd phase of this project, involving looking at guidelines/evidence summaries surrounding adjuvant chemotherapy for early breast cancer. Because we are looking at how these summaries evolve over time, we need to go back to earlier versions of these documents that fall within our observed time period of 1990 and Sept 2007. We note that you update your summaries monthly, and that it would be too resource intensive to mine all the updates, and thus thought that perhaps if we could retrieve one per year on the same month 1990-2007, that would suffice.

The purpose of the project is to understand the transfer of knowledge from clinical trials to guideline setting and ultimately, to clinical practice in cancer care. We have no intention of reproducing or publishing the requested guidelines. They will be used solely for research purposes.

We are nearing the completion of the project and would like to incorporate this data, and would greatly appreciate if you could respond as soon as possible.

Thank-you very much for your assistance!

Kristin

Kristin Julianna Konnyu
Research Coordinator
Clinical Epidemiology Program
Ottawa Hospital Research Institute
ASB Box 693, Rm 2-006
1053 Carling Ave, Ottawa
ON K1Y 4E9
(613) 798-5555 ext. 19878
Fax: (613) 761-5402

Comment entered 2010-05-19 19:11:25 by Englisch, Volker (NIH/NCI) [C]

BZDATETIME::2010-05-19 19:11:25
BZCOMMENTOR::Volker Englisch
BZCOMMENT::1

The PDQ-C application which is storing the data from April 1994 to 2002 doesn't run anymore on our new 64bit machines.
I've installed a virtual machine running Windows XP which allows me to extract the data for now.

John is trying to create a program that extracts all data from the PDQ-C for future use.

Comment entered 2010-05-25 11:13:47 by Englisch, Volker (NIH/NCI) [C]

BZDATETIME::2010-05-25 11:13:47
BZCOMMENTOR::Volker Englisch
BZCOMMENT::2

The data has been extracted for the FOIA request, so I'm lowering the priority.

Comment entered 2010-06-18 16:27:57 by Englisch, Volker (NIH/NCI) [C]

BZDATETIME::2010-06-18 16:27:57
BZCOMMENTOR::Volker Englisch
BZCOMMENT::3

The FOIA data has been delivered.

Comment entered 2010-06-18 16:28:12 by Englisch, Volker (NIH/NCI) [C]

BZDATETIME::2010-06-18 16:28:12
BZCOMMENTOR::Volker Englisch
BZCOMMENT::4

Closing issue.

Elapsed: 0:00:00.000591